Goodness it’s been almost 2 years since I created this website! Oh my! So much has happened. Short story on Oct 30, 2018 I had a double lung transplant. It’s taken over a year to recover and be somewhat normal. Then on March 11, 2020 coronavirus pandemic was announced worldwide.
So what’s the point of my Pulmonary Fibrosis adventure? Well not much, you can’t breathe. Your organs shutdown. Your only hope is to get some miracle and your lungs heal. Well that didn’t happen to me. I will say I have learned through my recovery of the transplant, you need fantastic healthcare, insurance, family, faith and dire determination and will power to get through the mental, spiritual and physical setbacks.
I was late in the game to seek mental therapy and support groups because I thought I was stronge. r than this physical aliment. I’ve gotten through many traumas in my life and well I could get through this one. Well hell no! Since my recovery I’ve joined several Facebook groups for Pulmonary Fibrosis (IPF-Idiopathic Pulmonary Fibrosis Support Group) and transplant life ( Transplant: The Good, The Bad, The Ugly. ) I would strongly suggest if you suffer from Pulmonary Fibrosis or have had a transplant surgery to join these groups. I joined other groups Rareconnect.org PatientsLikeMe.org that are recommended by the Pulmonary Fibrosis society. I didn’t like them , I was looking for advice when something happened to me, not a pity party. That’s me, maybe I used those sites incorrectly, but I am amazed at the lack of support by the Pulmonary Fibrosis societies. Pretty damn poor.
So what’s next on the horizon? Well now that I can focus again ( my anti-rejection drugs interfere with my cognitive abilities now and then ) I want to learn new skills. Lately it’s learning Black history via books ( James Baldwin, Toni Morrison ) & podcasts ( uncivil & 1619 ) and to train my right side of my brain via Fiber Artistry ( Knitting ) & drawing. I have also been on a quest to unplug from Facebook, Amazon, Google, Apple, and Microsoft. Real reason , data stealers and AI influencers. I want to be in control of my time on the internet and not be distracted by these tech giants. Already I have reduced my screen time by 50% !! I used to be online all day long whether it was streaming music, podcasts, reading daily newspapers, blogs and sending photos to Instagram of my crafting projects. Lots of wasted time.
So I will post some of my passions and look forward to dialogs with other like minded people.
Enjoy your life!